Friday, 9 December 2011

I am back.....with more about M.E.

Hello lovely followers and readers,

I hope you haven't given up on me!!! I must apologise for my absence lately. I have had the most awful relapse, and on top of that - a teething, and now crawling 9 month old baby!! So, all in all a very, very tiring few weeks! 

I thought I would just write a little post about myself this evening, as generally I haven't spoken much about myself on a personal level - other than brief mentions about my two children here and there. The one thing I wanted to share with you - is that I am a sufferer of M.E or CFS. This is a rather baffling illness, and I thought it would be worth highlighting just some of the impact it can have on peoples lives.

A beautiful cupcake bouquet made by a very skilled and crafty CFS sufferer.

M.E - Myalgic Encephalopathy, also known as CFS - Chronic Fatigue Syndrome, can be an incredibly debilitating illness for many sufferers. The first hurdle for many people, is diagnosis - and actually getting one, as it is STILL unrecognised by many people, even medical professionals, as being a real illness.

I was diagnosed in May 2010, and have found it an ongoing struggle to keep my day to day life ticking over with consistency. Some days, I am high as a kite (although less so since my daughter Isabelle was born in March), often running on adrenaline - and other days, I struggle to get out of bed. Symptoms are varied, but mostly include an almost indescribable feeling of fatigue, alongside pain, nausea, concentration and memory problems and countless other symptoms.

Around 250,000 people in the UK suffer from M.E or CFS

This blog was started as a way for me to interact with the world, on a more accessible level, since on many days I am just too exhausted to leave the house. In the time that has passed since I started Touch Beauty, I have started a BA in Business and Management at a local college, and I am so proud of myself for finding the courage and belief in myself to go for it.

Created by an immensely talented CFS sufferer who lives locally to me.

Unfortunately, the balancing act of keeping up with college work, parenting duties AND blogging, sometimes gets the better of me, and I have to take some time out to rest and recuperate. These times, are what CFS sufferers might call a 'relapse' or 'crash', when the symptoms just get too much to handle on top of normal day-to-day life.

There is no known cure or universally effective 
treatment for ME or CFS.

So, any quiet periods there have been on Touch Beauty, or that there may (probably will) be in the future, are not because I have become bored of blogging, or because I am not dedicated enough, it is just down to the fact that I need some time to re-charge my batteries.

I know of a few fellow CFS sufferers, who I have so much respect and admiration for, and who - despite probably feeling like they are stuck in a thick cloud of fog most days, have achieved so much. Some are bloggers, some are crafty-creative geniuses, some are fantastic and dedicated parents and some are fellow students. All of these people, if you met in real life, would appear completely healthy, normal and you most definitely wouldn't suspect they suffered from any illness. That is the thing, see. CFS/M.E is a totally invisible illness.

To anyone who has just been diagnosed with M.E or CFS, I will not lie - it is not an easy illness to live with, BUT anything is still possible, so always keep believing that you can achieve your goals and ambitions.

Thank you so much for taking the time to read this post. All of the pictures are of beautifully crafted items created by fellow CFS/M.E sufferers. I hope it has given you a little insight into my world, as well as the lives of many others who suffer with this confusing and often, life destroying illness. 

At least CFS doesn't impact on creativity and talent :-)

Here are a few links to sites that can provide more information about CFS and M.E.

The M.E Association -  Providing information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome), their families and carers. We also fund and support research, and offer education and training.

Foggy Friends - The aim of Foggy Friends is to provide a free, fun, safe environment where ME/CFS sufferers, their parents, carers and friends can seek help, support and advice, free from harassment.

And......I can't not mention the most wonderful, and inspiring beauty blogger, who I think has a fabulous talent and unique way of writing....Lisa at Brunette Beauty Banter. 

She has always been open about having CFS, and I admire her ability to keep a sense of humour through the up's and down's of having this illness. Please check out her fantastic blog, using the link above.


Emily said...

this is a great post, thanks for sharing and creating awareness, as myself i didnt really know much about this illness (& i bet it feels great to get stuff off yuor chest) xxxx

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